Elsa Dixler’s review of Susan Gubar’s memoir about ovarian cancer

Susan Gubar co-author with Sandra Gilbert of one of my favorite works of feminist literary criticism, The Madwoman in the Attic: The Woman Writer and the 19th Century Imagination (1979/2000), was diagnosed with ovarian cancer in November of 2005.

First paragraph, linked to Dixler’s NYT review (5/4/12): “When she learned she had advanced ovarian cancer, the feminist scholar Susan Gubar felt a “sense of liberation” that was almost euphoric. Caring for her elderly, increasingly demented mother had given Gubar a good look at the realities of old age, while her father’s suicide years earlier had deeply injured their family. Here, she thought, was a path between a life cut short and one painfully prolonged — a death (for late-stage ovarian cancer is almost invariably fatal) in her 60s, when her daughters were grown and she was happy in her second marriage and her work.”

More about this book and Susan Gubar’s career: A Feminist Professor’s Closing Chapters by Robin Wilson, Chronicle of Higher Education, April 22, 2012.


My trajectory

When I was in college, I became a theater techie.  I wanted to do stage lighting for a career, but I was sort of a slacker because I never really felt well.  Do you know how girls who don’t feel well are treated?

“If a physician of high standing, and one’s own husband, assures friends and relatives that there is really nothing the matter with one but temporary nervous depression—a slight hysterical tendency—what is one to do?”  Charlotte Perkins Gilman, “The Yellow Wallpaper” (1899)

Oh, but that’s 1899, you say?  A long time ago?  In between visits to doubting doctors and humiliating tests that showed nothing, I got good at unwisely self-anesthetizing.  But finally, after I had graduated from college and was floating around wondering what to do with myself, it became apparent that I had ovarian cancer, specifically embryonal carcinoma, which is a rare form of cancer that occurs in girls and young adult women, is extremely difficult to detect, and has a high fatality rate.  In those days, only 10% of patients survived 5 years.  And now?  Only 11%.

At Thanksgiving, 1976, the gynecologist rushed me into the hospital for a hysterectomy a week after which the oncologists rushed me into chemotherapy.  The prescribed protocol, which they said came from MD Anderson Hospital where they had sent the slides, was for me to enter the hospital as an inpatient and receive 60ccs of Cytoxan daily for 5 days per month for 24 months.

I had a couple of outspoken friends who seriously believed that I was a guinea pig in a big experiment about which I knew nothing.  They brought me articles and pamphlets.  I wasn’t in a formal clinical trial, but an unproven treatment protocol that was only achieving a 10% success rate.  Did the docs think that the more they used this protocol, the more chance of success it might have?  Like I said, the survival rate has only risen 1% in 35 years.

When the book Getting Well Again was given to me, I started practicing the brilliant “deep relaxation and mental imagery” work of oncologist O. Carl Simonton (1942-2009):

“He developed a very sophisticated approach to shift thoughts in a healthy direction and refined mental imagery exercises that were individualized to the particular style, symbolism, and the needs of a person.  His patients were becoming experts at using their continuous natural imagination in healthy ways that promote getting well.”

I began taking classes in botanical medicine from a medical doctor who had seriously questioned conventional cancer treatment as well.  The more I read and thought about it, the more I had to question the whole philosophy behind the administration of a toxic chemical with the intention of wiping out my immune system, destroying the quality of my life, and leading me into a passive, wretched dying process.  And so, after the 9th month of nauseating chemo, feeling like I would undoubtedly not survive the whole protocal if I continued, I made the very eccentric decision to quit conventional medicine.


Carl Simonton


Follow

Get every new post delivered to your Inbox.